HISTORY
The Community Constituency Group (CCG) of the ACTG was initiated in 1989 by a group of community treatment and research advocates to provide a forum for community input to the ACTG. In November 1990, it was established as a full Resource Committee of the ACTG, and its members are General Members of the ACTG.
| Nov 1989 | ACT-UP/New York attended the 7th ACTG Meeting uninvited. |
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Jan 1990 | NIAID sponsored a meeting between 10 community representatives and leaders within the ACTG in San Francisco. |
| Mar 1990 | Community representatives attended the 8th ACTG Meeting as invited observers. |
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| May 1990 | The Patient Constituency Group (PCG) was organized. |
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| Jul 1990 | The PCG attended the 9th ACTG Meeting. Representatives were allowed to attend Executive Committee sessions and the Scientific Core sessions as observers. |
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| Aug 1990 | The ACTG Executive Committee and the Patient Constituency Group recommended the formation of Community Advisory Boards at each ACTG site. |
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| Sep 1990 | The PCG met in Chicago to select members as voting participants on the ACTG Executive Committee and Scientific Core Committees. The group adopted the name Community Constituency Group (CCG). |
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| Nov 1990 | The CCG attended the 10th ACTG Meeting as a formal part of the ACTG system. Mario Solis Marich and Rochelle Rollins addressed the plenary session and introduced the CCG. |
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| Mar 1991 | The CCG established a Protocol Development Subcommittee to help researchers in trial design. |
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| Apr 1992 | The CCG distributed its priorities for the ACTG system at the 14th ACTG meeting. |
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| Jan 1996 | The Adult ACTG (AACTG) formed and was funded through NIAID as a cooperative agreement. CABs were required at each site. |
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| Jul 1997 | Monthly CAB calls were initiated. Held by time-zones, they provided a means for CAB members to talk about common concerns at their sites. |
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| Dec 1997 | The Adult CCG initiated the Scientific Agenda Subcommittee to discuss and organize community views on research topics and make study proposals to the AACTG. |
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| Jan 1998 | The Site Evaluation Subcommittee (SES) was asked to include CAB criteria in the evaluation of the sites. |
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| Dec 1998 | The first CAB Forum, organized by CAB members, was held at the AACTG Retreat. |
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| Sep 2001 | The CAB developed a CAB training to be held at each national AACTG meeting. |
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| Jan 2003 | CAB review of developing protocols initiated. |
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| Mar 2003 | CAB Liaison Monthly Business Call was initiated. |
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| Jul 2003 | CAB Certificates were provided to sites. |
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| Aug 2004 | CCG elected co-chairs. |
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| Nov 2004 | Community members from non-US sites join CCG. |
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| Dec 2004 |
US visa issues prevent non-US member from attending ACTG Meeting. |
| Apr 2005 |
Adult and Pediatric CCGs hold joint session at CCG Retreats. |
| Jul 2005 |
Discussion initiated on community training at non-US ACTG sites. |
| Aug 2005 |
CCG completes new scientific agenda. |
| Feb 2005 |
Network CAB (NCAB) becomes new name of CCG. |
Past and Current CCG Members, Organizers, and Supporters who have participated in the development and work of the CCG since 1990 are listed here.
SUBCOMMITTEES
The NCAB is composed of about 28 members. Each member serves a three-year appointment. The work of the NCAB is coordinated by a Chair. In addition, the NCAB has two representatives sitting on the Executive Committee who act as a formal liaison with the Group Leadership. The NCAB also retains membership on each Scientific Committee and Resource Committee.
The NCAB also works closely with the local AIDS Clinical Trials Unit (ACTU) Community Advisory Boards (CABs), to facilitate the transfer of local community concerns to the national ACTG and its committees, and the exchange of information between the national and local community representatives. All NCAB members shall be active members of their local CABs, where feasible, and overall, at least 80% of all NCAB members are active members of their local ACTU, or subunit, CAB.
The NCAB is coordinated by a Steering Committee, and there are 3 Subcommittees (CAB Liaison, New Members, and Scientific Agenda).
NCAB Organization Chart
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Steering Committee
The Steering Committee prioritizes what committees, focus groups, and protocol teams need coverage on an ongoing basis, and which do not. The ongoing business of the NCAB is coordinated by a Steering Committee. The NCAB Chair chairs the Steering Committee.
CAB Liaison Subcommittee
The CAB Liaison Subcommittee provides an ongoing link between the Community Constituency Group, which is part of the Central Group, and CABs, which are parts of sites, or ACTUs. The CAB Liaison Subcommittee coordinates ongoing communications with CABs, and serves as a resource for local CABs. In addition, the CAB Liaison Subcommittee takes the lead in coordinating ongoing periodic training of CAB representatives at general Group meetings and organizing CAB forums at the ACTG group meetings. The CAB Liaison Subcommittee supports the development of local CABs within the Central Group, and will monitor site evaluation criteria relating to CABs.
New Members Subcommittee
Members for the NCAB are selected by the New Members Subcommittee based on the need of the NCAB to retain a broad degree of experience (including living with HIV), various areas of expertise, and diversity including geographic, racial, gender, and ethnicity. The NCAB strives to maintain membership that can effectively represent the interests of the larger HIV community in the United States, yet at the same time reflect the various communities impacted by this epidemic.
The New Members Subcommittee coordinates the solicitation of potential NCAB applicants, reviews applications for membership, and coordinates mentoring of new members. Solicitation for applicants to the NCAB is made through many paths: through the Community Advisory Boards, through site staff, email, through web-sites, and national and regional AIDS organizations. NCAB members are also encouraged to distribute the Request for Applications, when it is issued, to as broad an audience as possible in order to effectively reach traditionally under-served populations.
If you are interested in applying to the NCAB complete the MCAB Members Application Form.
Scientific Agenda Subcommittee
The Scientific Agenda Subcommittee (SAS) includes the primary RAC representatives or alternatives and other interested NCAB members. The SAS is responsible for development of an annual written scientific agenda that reflects the urgent needs of people living with HIV/AIDS, and of community-based clinicians treating HIV disease.
Information for NCAB Members
The information in this section is for Current NCAB members. A Password is required to access some of these documents.
Information for Current NCAB Members about Protocol Team and Committee assignments and meeting minutes can be accessed in this section.
NCAB Standard Operating Procedures (SOPs) (password)
NCAB Roster (password)
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